June 25, 2010

I love the sprinkler!

Well today went pretty well. No major melt downs! Praise God!!!!!!!!!!!!!!!!!!!!!!!!!!

To give a little history, started the CEASE therapy on Monday 06/ 21/10 no aggravations! We are addressing the HEP B vaccine first. My God I read the warnings on the information sheet the doctor gives you and I could not believe it. People who have a serious allergy to bakers yeast should not have the vaccine. Brother!!!! When Lizzy was 20 hours old I did not realize it would be an issue. Candida !  Our new homeopath and ND confirmed that she does have Candida. Finally somebody supported my theory!! Praise God again !!!!!! Now we know what we are dealing with for sure.

In addition to her new regime Willie and I have started to paint her new room. We are creating a zone that is just for sleeping. She will have her books and music to listen to but no TV. It is too over stimulating for her. The colors we chose are white and a very unsaturated sage green, with fuchsia and turquoise accents. (Like flowers, one of her favorite things). Her dresser will have drawer pulls in the shape of daisies and watercolor prints of various kinds of flowers. Color therapy is so important.  I have even donated a lot of her clothes that was very brightly colored. Every little bit helps.

My painting partner has quite an aptitude for it. He does a great job! He is so willing to help with Lizzy. He loves her so. It was Willie who got her to take her Omega 3 chewables.

“Hey Lizzy do you want a Scooby snack?” That is all it took. She would not do it for any one else. It always amazes me how God provides the right people at the right time.

Well enough from me. It is time to let my beautiful daughter contribute.   And hereeeeeeeeeeeeeeeeeeeee’s Amelia!

Hi, everyone. Well honestly I don’t know what to say. Lizzy’s healing journey over the last six years  hasn’t been easy. Don’t always say or show my grief over her. She was something I wanted since I was about her age. I was the first person Mom told about expecting her. I mean,she didn’t even tell Dad yet.

Before she was born almost every night I would practice singing to her from the music box on her cradle. The song was “Lullaby and Goodnight.” Once she was here  I would go in there and sing to her. She liked it. As she got a little older she and I shared a room. Every morning  whether I was a sleep or not, would open my eye lid and say “Hello”. I hated when she would do that and I’d get mad at her for it. But, now I think I’d give anything to have her interact in that way. I was about 12 when Lizzy faded into her autism bubble. At the time I had very little knowledge of autism . I was truly and deeply unhappy in every way for almost 2 years.  I didn’t know or even think it was cause of Lizzy. I never want to relive those days again.

I help take care of Lizzy.  In the very, very beginning of the journey I would stay up with her and Mom. As I recall, most of these nights were spent with her just screaming at the top of her lungs while we sit there wondering what’s wrong and what to do. In the morning I was so spent and I had a very hard time getting my younger brothers to be quiet.   Even though she was upstairs, with her door closed,  she had and has extremely sensitive hearing.

Well, that’s my side of the story folks. True, Lizzy is slowly getting better every day, but it’s still not easy when her old habits kick in again. Lizzy has changed our world and she is a wonderful little sister and I couldn’t ask for a better one. I just want her to feel better and no longer be in emotional and physical  pain.

One thought on “June 25, 2010

  1. Amy,I looked up the CEASE therapy. It sounds like you are on the right path. I’m SO thankful! I LOVE the colors you selected for her room.

    Willie, you are a great helper. Great idea with the, “Scooby snack.”

    Amelia, your tender words are so sweet. You are such a blessing!

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