Day 10 “Ice Cream, Ice Cream”

Well we woke up at 3am and was awake again until  5:30am. She was content most of the time. I put on an Elmo DVD for her and that helped.

She woke up at 11:30am very cranky.(Amelia was attending to her while I was out) As soon as she had a cup of Naked juice with fat soluble Vitamin C peace and tranquility was achieved.

Otherwise, she had a very good day! We went outside again and I was taking pics of her with my iphone. She noticed, walked up to me and said “Smile!”

She proceeded to pose for me a little longer with her big bro Gabriel aka Higee.

She is sooooooooooooooooooooooooooo much happier and pleasant not to mention cute!

As the evening progressed we topped it off with soft serve ice cream cones for all of the kids. (Last thing I need is ice cream.)

For the first time EVER she held the cone and licked it . “Ice cream, ice cream.”

ANOTHER FIRST!!!!!!!!!!!!!!!!!!!!!!!!!!  She did not eat much of it, but she did it and followed our instructions to the letter. That’s the kind of stuff that makes my heart smile!!

Dad will be home tonight, so she can cuddle and be crazy with him. They love each other so. Again, we pray for sweet dreams and continued healing.   Until tomorrow, let the healing continue.

Day 9 on Cease Therapy

Well, we had a GREAT night. Lizzy slept through and arose at 9a.m. Great mood, very affectionate, verbal and engaging.

Elizabeth played outside three times with her brothers and sisters.

As Matthew walked up to her she said “Hi baby, isn’t he cute?! WOW!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

We hope to have a great day again tomorrow.

Spoke to our CEASE therapy consultant and we both agreed we need to adjust the dosage on the Cuprum.   Otherwise we all feel it is a great fit for her right now.

Started the higher potency of the Hep B vaccine detox yesterday, no problems! Dear God I pray that our baby girl will have a full recovery. I feel that we are on the right track.

Let’s all hope for sweet dreams and continual sleep. ZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZZ

June 28, 2010 In Comes the Angel of Mercy

Elizabeth woke up this morning at 3am screaming again.  As I am springing out of bed(being 33 weeks pregnant is a miracle in itself) to see to her needs I think dear God help me. I don’t think I can do this tonight! In the process of checking all possibilities…. in comes an angel of mercy. God had chosen my dear sweet husband Todd who states” I got this go back to bed”. Now keep in mind that this man has to be up in 2 hours to catch a train to Manhattan. The train ride is 2 hours long each way. Plus, he has an overwhelming amount of work to do this week and we will not see him until Friday July 2nd.

Thanking him I stagger back to bed and ponder on his wonderful generosity. Grateful that God had chosen him as the one to help,  I slowly drift back to sleep.  How blessed  I am to have him as a partner and father to our eight children. Yes, we are not perfect by any means but when it really counts we are there for each other.

Todd awakens me at 5:30am and says it’s time to get up. He informs me that Lizzy is okay and happy just AWAKE. He had taken care of her for the last 2 1/2 hours instead of getting his much-needed sleep.  What an angel?!

Again, Lizzy has been one to allow us to see all of the wonderful things in our lives. It’s not that we didn’t see them before but she allows us to see things on a whole new level.  Especially when we are at our weakest.

Choosing to go inward I really take a look at myself and those around me. Out of disaster comes opportunity. What a great lesson it has been for us all.

For example:  last night we had roasted chicken for dinner. Of course the prized wish bone was dried and shared between Willie and Martin. They stood in front of each other in mortal combat mode and pulled. Willy was victorious. As we are sitting around talking Willy shares what his wish was.

“Mom, I won the wish bone pull and I wished for Lizzy to get better.  I guess it doesn’t work after all.”

Telling him that it takes time my heart  filled with more love and admiration for my little dude. What an awesome tribute to his little sister! Again, seeing God’s work through others.

I get up I take Todd to the station and return. Lizzy  is finally asleep at  6:30am. She was happy just awake for 3 and 1/2 hours. And so it goes on.

She wakes up at noon with her eye very swollen.

Seeing this, I shake off my tears and proceed to act like I don’t mind.  She doesn’t mind, she was very content, affectionate, cooperative and verbal. So I follow her lead and keep going. We had a good day! She played outside and ran through the sprinklers again and is now watching her Favorite Scooby Doo.

So let’s see what tonight will bring. Through the grace of God I will have the strength tonight now that I received a little more sleep and a jump-start to my heart by my “Angel of Mercy”.  Thanks Toddo xo

June 27, 2010 Aggravations are part of it

Rough night last night! Major aggravation from the Cuprum. Woke up at 2am and did not go to sleep until 5am.  Finally woke up at 11a.m. with a swollen eye. Exteriorzation is good but not easy.(the picture you see)  It means something is working it’s way out.

But, she was very content, affectionate and verbal. Thank God!!!!!! The picture on the right shows how much better it is. That was 5 hours later!

Need to adjust the amount or postpone. Have meeting with homeopath on Tuesday.

Our Lizzy Gal is on her way back to us!

June 26, 2010 It is Christmas in June!

Lizzy has had a very good day. She was given her Cuprum Metallicum remedy and it suits her very well. She is more engaging, verbal and happy. It is amazing what the right remedy can do.

Elizabeth is on a Rudolph the Red Nosed Reindeer kick this week. She and big bro Gabriel have been watching the DVD  together quite often.

Gabriel told me, “Mom,  this song (There’s Always Tomorrow) reminds me of Lulu and when she will be better.”

Kleenex anyone? Of course the tears are flowing now as I reflect on it.

Sometimes I become so lost in my own grief about her that I forget how much she affects others around her.  Shame on me. Gabriel being only 8 has a better handle on things than most little dudes and he is an absolute blessing. Lizzy’s recovery involves every living thing in our home. Cats, dogs, fish, family  we all play a huge role. Thank you dear God for the support you provide us all.  Each other.

Below are the lyrics to her song that she sings and sways to. Who would think the Rankin and Bass film I watched on tv when I was a kid would have such an impact on my little girl?

There’s Always Tomorrow

From Rudolph The Red-Nosed Reindeer

There’s always tomorrow,
For dreams to come true,
Believe in your dreams
Come what may.

There’s always tomorrow,
With so much to do,
And so little time in a day.

We all pretend
The rainbow has an end
And you’ll be there my friend someday.

There’s always tomorrow,
For dreams to come true,
Tomorrow is not far away.

We all pretend,
The rainbow has an end,
And you’ll be there my friend someday.

There’s always tomorrow,
For dreams to come true,
Tomorrow is not far away.

June 25, 2010

I love the sprinkler!

Well today went pretty well. No major melt downs! Praise God!!!!!!!!!!!!!!!!!!!!!!!!!!

To give a little history, started the CEASE therapy on Monday 06/ 21/10 no aggravations! We are addressing the HEP B vaccine first. My God I read the warnings on the information sheet the doctor gives you and I could not believe it. People who have a serious allergy to bakers yeast should not have the vaccine. Brother!!!! When Lizzy was 20 hours old I did not realize it would be an issue. Candida !  Our new homeopath and ND confirmed that she does have Candida. Finally somebody supported my theory!! Praise God again !!!!!! Now we know what we are dealing with for sure.

In addition to her new regime Willie and I have started to paint her new room. We are creating a zone that is just for sleeping. She will have her books and music to listen to but no TV. It is too over stimulating for her. The colors we chose are white and a very unsaturated sage green, with fuchsia and turquoise accents. (Like flowers, one of her favorite things). Her dresser will have drawer pulls in the shape of daisies and watercolor prints of various kinds of flowers. Color therapy is so important.  I have even donated a lot of her clothes that was very brightly colored. Every little bit helps.

My painting partner has quite an aptitude for it. He does a great job! He is so willing to help with Lizzy. He loves her so. It was Willie who got her to take her Omega 3 chewables.

“Hey Lizzy do you want a Scooby snack?” That is all it took. She would not do it for any one else. It always amazes me how God provides the right people at the right time.

Well enough from me. It is time to let my beautiful daughter contribute.   And hereeeeeeeeeeeeeeeeeeeee’s Amelia!

Hi, everyone. Well honestly I don’t know what to say. Lizzy’s healing journey over the last six years  hasn’t been easy. Don’t always say or show my grief over her. She was something I wanted since I was about her age. I was the first person Mom told about expecting her. I mean,she didn’t even tell Dad yet.

Before she was born almost every night I would practice singing to her from the music box on her cradle. The song was “Lullaby and Goodnight.” Once she was here  I would go in there and sing to her. She liked it. As she got a little older she and I shared a room. Every morning  whether I was a sleep or not, would open my eye lid and say “Hello”. I hated when she would do that and I’d get mad at her for it. But, now I think I’d give anything to have her interact in that way. I was about 12 when Lizzy faded into her autism bubble. At the time I had very little knowledge of autism . I was truly and deeply unhappy in every way for almost 2 years.  I didn’t know or even think it was cause of Lizzy. I never want to relive those days again.

I help take care of Lizzy.  In the very, very beginning of the journey I would stay up with her and Mom. As I recall, most of these nights were spent with her just screaming at the top of her lungs while we sit there wondering what’s wrong and what to do. In the morning I was so spent and I had a very hard time getting my younger brothers to be quiet.   Even though she was upstairs, with her door closed,  she had and has extremely sensitive hearing.

Well, that’s my side of the story folks. True, Lizzy is slowly getting better every day, but it’s still not easy when her old habits kick in again. Lizzy has changed our world and she is a wonderful little sister and I couldn’t ask for a better one. I just want her to feel better and no longer be in emotional and physical  pain.

Reason for Blog 06/25/2010

Hello All,

This blog was created to inform and document the recovery of our autistic child. There are so many changes that happen each day and it is very difficult to share with everyone involved. So, this is the resolution. Pictures, films and daily notes will be shared by myself and my oldest daughter.

Why Queen Anne’s Lace? Well, it is our autistic daughter’s favorite and it also symbolizes the many details that make up our precious baby girl. From a distance it looks like any other pretty white flower. As one gets closer you can see the small details that make up the entire flower. That is our Baby Elizabeth!

Plus, the red spot in the center of the flower (according to description) was from Queen Anne who poked herself causing a drop of blood to fall on her beautiful lace.  That represents her pain and the pain of those who have fought to recover our precious girl.

So each entry will document her progress of  healing and the healing of the hearts that love her so.